We have a 26-year-old daughter who has Usher syndrome ("The Sound of Hope," Jan. 31). I have asked her time and time again to get the implant, and she says she would rather live in the deaf world. I was hurt and still am that our daughter has Usher syndrome. I still blame myself, even after all these years. We do have a deaf uncle four generations back. I still say: Why me?

She has two boys who can hear and see great. Her peripheral vision is slowly going. She has an appointment to go see a retina doctor. I feel helpless, because she wants to go to work and get off disability. She did graduate the only deaf person at our alma mater. There is nothing wrong with having a deaf person. I have learned to live with it. She has, so why can't I? We learned about her disease when we lived in Mississippi.

I try to do all I can for her until she loses her eyesight. I will be here for her forever. Good luck to you all.

To post a comment, please log into your IND account. If you do not have an account, click the "register" button to create one. Facebook comments can be used as an alternative to creating an account at theIND.com.

LA LA Land
Advertisement

Read the Flipping Paper!

Click Here for the Entire Print Version of
IND Monthly
Advertisement
Advertisement